2017 Agenda


HealtheVoices™ 2017 will be a true three-day event, including opportunities to hear from experts and fellow advocates in engaging group and breakout sessions. Over the weekend, you can expect to hear about many aspects of advocating online in the health community. We hope you will learn new information and take some of the key learnings from our sessions to apply in your refreshed advocacy work.

Friday, April 21, 2017

8:00-9:00am — Registration

8:30-9:30am — Breakfast

9:30-10:15am — Welcome Address & Introduction

10:15-10:30am — Break

10:30-11:00am — An Introduction to Energy Management

Speaker: Rhonda Waters

Advocating for others (and attending a weekend-long workshop) takes a lot of energy, both physically and emotionally. Performance Coach, Rhonda Waters, will guide you through some exercises in order to offer you tools and techniques for strategically spending and recovering that energy resource.

11:00-12:30pm — Together We Thrive: The Power of Our Stories

12:30-1:30pm — Lunch

1:30-2:30pm — Combating the Stigma of Chronic Illness: Stigma Types and Strategies

Moderator: Chrisa Hickey

Panelists: Todd Bello, Kirsten Schultz, Aaron Laxton, Christy Stone, Sue Rericha

A panel of online health advocates will lead an open discussion about the different types of stigma faced by advocates like yourselves living with a chronic illness, and ways to combat them. The panel will discuss stigmas often conveyed by the public, medical professionals and those in the workplace, and how to use in-person and online advocacy efforts to change these perceptions and improve the understanding of chronic illness.

2:30-2:45pm — Break

2:45-3:45pm — E2 (Empathy and Emotion): Navigating the Advocacy Landscape While Maintaining Your Own Mental Well-Being

Speaker: Tiffany Taft, PsyD

Dr. Tiffany Taft will offer guidance, resources, and tools for patient advocates like yourselves who are either living with chronic illness or caring for someone with chronic illness, so you are better equipped to help your communities while sustaining your own mental well-being—by bringing both real-life experiences and data to the discussion. Session sponsored by Everyday Health.

Session sponsored by Everyday Health

3:45-5:00pm — Break

5:00-7:30pm — Networking Hour & Dinner

7:30-9:30pm — HealtheVoices Open Mic Night

MC: Luke Escombe

You are invited to join us for a coffeehouse-style open mic night with coffee and dessert. Interested attendees will perform music or poetry, showcase your artwork or share experiences and talents. Our MC, Luke Escombe @MrEscombe, will kick everything off!

Saturday, April 22, 2017

7:00-7:45am — Restorative Vinyasa Yoga

8:00-9:00am — Breakfast

9:00-10:00am — The Facebook Family of Apps & the Patient Journey

Speaker: George Alafoginis

George Alafoginis, Global Marketing Solutions Partner at Facebook, will share how you can best engage on Facebook as an advocate and platform user. As health information technology has improved, people have increasingly turned to the internet and mobile devices for health advice and interactions. This paradigm shift in patient behavior has led to the democratization of health decision-making and an increase in personalized connections across Facebook.

Session sponsored by Facebook

10:00-10:15am — Break

10:15-11:00am — Workshop 1A: Storytelling in a Mobile World

Speaker: Amy O'Connor

Amy O'Connor, Editorial Director at Everyday Health, will discuss the growth of mobile and provide insights on how to create more "snackable" or shareable content for people on the go. Session sponsored by Everyday Health.

Session sponsored by Everyday Health

10:15-11:00am — Workshop 1B: How to be an Effective Advocate

Speakers: Christel Aprigliano and Nick DeSarno

Professional health advocate and diabetes activist, Christel Aprigliano, will share her experiences and best practices on how you can engage with local and national legislators. She will speak with Nick DeSarno of the Public Affairs Council about ways in which you can ensure your voice is represented in health policy—both on the state level and on Capitol Hill.

11:00-11:15am — Break

11:15-12:00pm — Workshop 2A: Advocacy Beyond the Blog: Making the Most Out of a Medical Meeting

Speaker: Debbe McCall

You have a successful blog or Twitter account. Now what? Extend your voice to scientific congresses and research where the patient voice is often absent. Cardiovascular disease advocate, Debbe McCall, will share her insights on attending medical conferences, how to get involved with medical research and how to share what you learn with your community.

11:15-12:00pm — Workshop 2B: Media 101: Approaching and Building Relationships with the Media

Moderator: Ingrid Eberly

Panelists: Dave Bexfield and Brandon Staglin

Ingrid Eberly, Vice President of Brand Marketing at Healthline will share secrets for creating media pitches that break through the clutter and get attention. This panel discussion will provide helpful dos and don'ts to turn your idea (or already-crafted content) into a story the media wants to publish and show you how to prepare for your interview when the time comes. Session sponsored by Healthline.

Session sponsored by Healthline

12:00-12:45pm — Lunch

1:00-1:45pm — Workshop 3A: Here's How to Get Video Done

Speaker: Josh Robbins

Josh Robbins, a 2017 GLAAD Media Award nominee, has perfected the easiest ways to create amazing and engaging health video content in social media, and this powerful session will include all the tips, tricks, tools, apps and gadgets that can help you reach your audiences using the most engaging form of content — video.

1:00-1:45pm — Workshop 3B: How to Grow Your Audience Smartly And Effectively

Moderator: Sarah Snow

Panelists: Benjamin Di'Costa, Rachel Star and Lea Ann Leming

Sarah Snow, the Director of Audience Development at Wisdo.com, has traveled across the U.S. unlocking the power of video storytelling. Sarah will lead a panel discussion with patient advocates Ben DiCosta and Rachel Star along with Lea Ann Leming, Vice President of Audience Development & Engagement at WebMD, about the best practices for expanding your network on various social media platforms. An informative and educational session for attendees who are new to advocacy, as well as for those with experience.

Session sponsored by Wisdo and WebMD

1:45-2:15pm — Break

2:15-3:00pm — Workshop 4A: Creating Credible, Strong Content – How to Interpret and Share Scientific Data with Your Audiences

Speakers: Arefa Cassoobhoy and Heather Gabel

Dr. Arefa Cassoobhoy, MD, MPH, Medical Editor, WebMD, will discuss finding credible sources when contributing articles for a site like WebMD, touching on how to look at a study, how to find experts in the field and consulting organizations that are thought leaders on the topic of interest. Dr. Cassoobhoy will be joined by diabetes advocate, Heather Gabel, who will share the value of weaving scientific information into a story/blog post and show you how to do so effectively.

Session sponsored by WebMD

2:15-3:00pm — Workshop 4B: Showing Your Expertise While Financially Supporting Your Online Advocacy

Moderator: Laurel Netolicky

Panelists: Julie Cerrone, Todd Seals and Brooke Abbott

Moderated by Laurel Netolicky of WEGO Health, a panel of experienced patient advocates will discuss methods for financially supporting your advocacy efforts through opportunities including focus groups, sponsored posts, speaking engagements and advisory boards. Session sponsored by WEGO Health.

Session sponsored by WEGO Health

3:00-3:15pm — Break

3:15-4:15pm — The 10 Fundamentals of YouTube: How to set a Creative Strategy

Speakers: Ann Nguyen and Daniela Cruz

YouTube's partner managers Ann Nguyen and Daniela Cruz will share their core guidelines to test your ideas and give them the best chance of success on the platform. In this session, Ann and Dani will walk you through each of the 10 elements to teach you how to set a creative strategy for your channel and build a loyal audience. Use this framework to test all of your ideas—from writing a new script, to filming a series or even creating a whole new channel. Session sponsored by Google/YouTube.

Session sponsored by Google/YouTube

4:45-5:30pm — Restorative Vinyasa Yoga

7:00-9:00pm — Small Group Dinners at Wildfire Restaurant

Sunday, April 23, 2017

8:30-9:45am — Breakfast

8:30-9:45am — Social Media 101 Kiosks: Getting Started with Twitter, Facebook or Instagram

Need help getting started on a new social media platform or exploring the basic functionalities? During breakfast on Sunday, our HealtheVoices event team will be available for you to stop by for quick help with Facebook, Twitter and Instagram.

9:45-10:45am — Exhibitor Fair

You will have the opportunity to meet some of our event sponsors and learn about how their platforms can be utilized (or better utilized) in support of your efforts. Exhibitors include Everyday Health, WEGO Health, Wisdo, and Healthline.

10:45-11:00am — Break

11:00-12:00pm — Privacy in the Public Eye & Protecting Yourself on Social Media

Moderator: John Grohol

Panelists: Anna Norton and Kamaria Laffrey

In this session, a panel of patient advocates will discuss their experiences with negative, prying and/or inappropriate comments, establishing boundaries with audiences, responding (or not responding) to trolls and avoiding conflicts of interest while remaining an invaluable resource to your online patient community.

12:00-1:00pm — Lunch & Closing Remarks

1:00-1:30pm — Power Half Hour: Taking Care of You

Speaker: Josh Robbins

Every health advocate must pause, re-energize, and reset themselves in order to continue your health advocacy work. This engaging session led by HIV advocate, Josh Robbins, is your gift to yourself at HealtheVoices and will motivate you, challenge you and encourage you to leave the conference ready to continue your journey.